Short-Term Memories

Short-Term Memories

mighty old tree with green spring leaves

By Donna Brooks

You went down on August 26—my 29th birthday. That’s what the doctors and nurses kept calling it, anyway. It didn’t take long for me to understand that this is one of many ambiguous terms medical practitioners use to speak without saying anything.

Jack and I got the call around 9 p.m. and drove through the night; buzzed on the champagne and bottles of beer we drank to celebrate the last year of my twenties, despite it being a Wednesday. In the middle of nowhere Iowa, your doctor called to ask my permission to use life-saving measures while they transported you from the VA hospital in Des Moines to the neurotrauma unit at Mercy. I gave it, even though I promised you eight years earlier that I’d never let you live in a vegetative state. DNR you had me repeat to you over the phone. Do Not Resuscitate.

I found you drenched by the rising sun, entangled in a menagerie of machinery. Fate found us together again at Mercy, as we were on that very day 29 years before; the hospital I was born in.

Black circles of dried blood ringed your nostrils. When I asked why they hadn’t bandaged your engorged, bleeding ear, which had nearly tripled in size, a blonde nurse said, “She was down for a long time. Maybe eight hours. The blood coming from her ear is the least of our concerns.”

I had an overwhelming impulse to slap her, but buried my fingernails into my palm instead. My little brother is on his way for God’s sake. I moistened a paper towel and eased the blackness away.

A machine blew air into your lungs. A machine cleaned your kidneys—the first organs the body lets go of in an attempt to preserve the lungs, heart, and brain. Your body was the most impressive machine of all.

The neurologist and nephrologist told me to go get some rest—I’d need it for making big decisions. Big stroke. Big sister. I drank instead.

Your MRI showed what they called Shower Emboli; twelve strokes at once. The glossy photograph of your brain looked like a series of constellations mapped in a wrinkled galaxy. The doctor said your heart collected these shooting stars for years, maybe decades before the big bang. Blood pumps in quicker than it can pump out, sloshing and coagulating in the meaty basin of your left ventricle. Atrial fibrillation, he called it, a result of habitual drug use.

His tone carried a tinge of delicate inquiry, just in case the news he was delivering might come as a surprise. As if we could have possibly overlooked the last twenty years of our lost childhoods. Or maybe missed your propensity to, repeatedly, choose meth over motherhood; prison and halfway houses over our upper-middleclass suburb; crime over comfort. Dallas and I nodded. He looked relieved.

I wanted that image—my brother and I sitting there, hunched and raw, on the couch in your hospital room—to be used in D.A.R.E. programs across the country. Particularly in the Midwest where methamphetamine continues to turn mothers, fathers, brothers, sisters, and friends into the poison it’s made of. The message: Meth will come back to bite you. Sometimes, years after you quit using it. It destroys everything, inside and out.

Meth changed the beat of your heart.

I prayed for the first time in years. Prayed for your recovery. For your forgiveness. For relief from my opaque guilt for casting you out of my life. Jack read to you from your worn and heavily annotated bible Cousin Angel brought from Spring Hill. His voice was low and soft, a relief from the sterile, rhythmic reminder that you were not breathing on your own. Your bookmark was a picture I’d sent you from the night Jack asked me to marry him. It held the place of Corinthians 13:4-8. Love keeps no record of wrongs.

For ten days this went on. Sooner or later, the doctors said, this stroke will kill your mother. Don’t talk to me like I’m a child, I snapped, and immediately felt guilty, because I am a child. Your child. We agreed to extubate.

She may not breathe on her own, they said. You did.

She will be paralyzed on her left side of her body, they said. You are not.

She will have substantial brain damage, they said. You do.

You’ve lost your ability to create new memories—anterograde amnesia—which is pretty much on par with the cruelty life has shown you. What if, I thought, you awoke with a blank slate? Unburdened by the abuse of your childhood. The suicides of your brothers. The manic depression. What if we could meet between the wrinkles of time and start again.

 

Donna M. Brooks holds an MFA in creative writing from Queens University of Charlotte. She was a 2013 finalist for the Iowa Review Award in nonfiction and a finalist for the Santa Fe Writers Project Award in nonfiction. Her work has appeared in Mamalode. She lives in Sioux City, IA with her husband and daughter.

 

What’s in a Gene?

What’s in a Gene?

By Alexis Wolff

whatsinagene“The geneticist is going to look at this and freak,” a woman who introduced herself as Veronica told me as we sat across from one another in her Manhattan office. On the coffee table between us sat my application, which I had been instructed to complete at a desk by the receptionist, even though I’d mailed in an identical one several weeks before. This new application sat opened to a grid where I’d filled in information such as the height, weight, hair color, and eye color of my sister, parents, and maternal grandparents. I left blank the boxes devoted to my paternal grandparents. I’d never met them.

“Let’s try to fill some of this in,” Veronica said, “or else the geneticist is going to have some trouble doing her job.”

“Well,” I apologized, “I’m not sure I know any more than what I put.”

“We can just estimate.”

I shrugged.

“So your dad’s mom,” Veronica continued. “Would you say she was small, average, or large?”

“I have no idea.”

“What would you guess?”

“Medium?”

“Good.”

“And her hair color?”

“Maybe brown?”

And on we went. When we finished, Veronica flipped through the rest of my application, in which I documented my interests and talents, my ethnic heritage, and my personal and family medical histories.

“You’ve got a great profile,” she said, glancing up to look me in the eye. “I could match you in a day.” I supposed that was a compliment.

Veronica put down my application and shifted back a bit on the couch. “So,” she asked, “what made you interested in egg donation?” I hesitated. I knew that I couldn’t tell Veronica the whole truth. My interest dated back a few years to when I was a junior in college and the writer Gay Talese spoke to my English seminar class. The week before, we’d read Talese’s classic profile of Frank Sinatra, which Esquire had recently dubbed “The Greatest Story Ever Told.” We’d sat around the circular oak table discussing specific passages and techniques like peewee league football players watching Super Bowl clips.

A week later, Talese stood before us, wanting to hear about the pieces we intended to write. A sophomore named Lily spoke about the frequent ads in the Yale Daily News promising five-digit payments to egg donors. She said she didn’t understand why a woman would subject herself to such an invasive medical procedure, even for so much money. Talese nodded intently as Lily explained that she planned to interview donors and recipients to understand the process better. When she finished, Talese offered his advice: donate your eggs.

We knew that this kind of first-person participation was a central tenet of New Journalism, yet we chuckled. We were merely students, after all, just toying with the idea of being writers. We loved to read about Talese stalking a sick Sinatra after the singer refused an interview, or abouthim tagging along with members of the notorious Bonanno crime family for his 1971 bestseller, Honor Thy Father, but we wouldn’t have dared try either ourselves, and the thought of donating eggs just to get a good story was preposterous.

Two years later, I’d graduated from college and committed myself to being a writer. I was living in New York City—the same city as Talese, but in a far different world. I’d published a few essays for twenty five or fifty dollars, but professional success was nowhere in sight. As a graduate student with over sixty thousand dollars in debt, and more coming, money was a problem. So when I saw an ad online offering $8,000 for my eggs, I was tempted. I thought of Talese. I could use the money, but more importantly, I could use the story. But I knew I couldn’t tell that to Veronica.

“In college, I always saw ads offering tons of money for egg donors, and I told myself I’d never be a part of that,” I began. “It seemed like they were trying to genetically engineer a perfect child. But I noticed in your ad that recipients know nothing about donors except that they’re healthy and have similar ethnic backgrounds, which makes me think they’re seeking egg donors because they really need them.”

I didn’t say explicitly that I wanted to help such couples, but that’s what Veronica heard.

She nodded excitedly. As she expounded on the rewards of knowing you helped an infertile couple start a family, I felt a little dirty. I admired people with such motives, but for me, at least at this point, donating was about what I’d get rather than what I’d give.

I studied Veronica as she spoke. She was probably ten years older than me, wearing a mauve button-up shirt with shoulder pads. Her lips were painted a shade lighter than her shirt, and her eyelids a shade lighter than her lips. I thought of the advice I read once in a fashion magazine—makeup should match your coloring rather than your clothing. I wondered whether Veronica was judging me too. “So what I’m going to do now is tell you a little about the process,” Veronica said. I nodded as she recited, confidently and precisely, the evolution of in vitro fertilization from a procedure performed with a woman’s own eggs to one that frequently employs eggs from donors. As a donor coordinator, she’d surely given the speech dozens, or maybe hundreds, of times before, but her warm smile made me feel that she was truly excited to tell me.

The American Society for Reproductive Medicine (ASRM) estimates that donating my eggs would take approximately fifty-six hours over about two months, Veronica told me. It would begin with a series of physical, gynecological, and psychological examinations to determine my eligibility. Once I passed and was matched with a recipient couple, I would receive an injection to halt the normal function of my ovaries. This would help control my response to the fertility hormones I’d have to inject for ten days, and allow my cycle to be coordinated with that of the recipient.

I thought about that recipient. She’d likely be coming to the clinic the same days as me, maybe even at the same time. I knew I’d be looking around at the clinic’s other patients and wondering who would receive my eggs, and I guessed she’d be searching for me too. I began to feel fond of her, whoever she was.

On the coffee table, Veronica set a glossy black and white paper facing me that showed ten small and seemingly identical slides. The replication made it look looked like Andy Warhol’s version of an ultrasound.

She pointed to six dark blurs in the last slide. “Here we see six mature eggs,” Veronica said. “Look here and here and here and here and here and here.” I looked. Normally, a woman develops and releases only one egg per month, she explained, but under the influence of fertility hormones, multiple follicles develop. I pretended I could see the difference between this slide and the one before it. Pictures like these would be taken of me too, she continued, because after I began taking fertility hormones, I’d come to the clinic early in the morning every few days so ultrasounds could monitor my eggs’ progress.

“Since you’re young, you would probably have even more eggs than this donor,” Veronica said. Most women on fertility hormones produce as many as twenty-five or thirty mature eggs per cycle.

Veronica set another glossy paper before me, this one a color cross-section illustration of the female sex organs. The image looked only vaguely familiar, like something I was supposed to memorize in ninth grade biology. Veronica explained that when the doctor decided the time was right—just before my eggs would have released into my reproductive system—he would inject me with another drug to prepare them for retrieval. After sedating me, he would insert a needle up through my vagina to coax them from their follicles. After I left his office, my eggs would be mixed with sperm and incubated for three to five days before being implanted into the uterus of the recipient.

I’d already read about this process, but hearing it aloud made it more concrete. This was really going to happen. A part of me was going to become a part of someone else—that amorphous woman I had started to feel affection for. I really did want to help her. Still, the thought of giving away a part of myself to a stranger made me feel a little uneasy.

“The procedure can be done in fifteen minutes, and it definitely shouldn’t take longer than an hour,” Veronica said. “And because you’ll be given a sedative to help you relax, we ask that you have someone to accompany you home that day.”

I froze. That was going to be a problem.

I hadn’t told anyone about this meeting, not even my boyfriend, and if I ever told him, I couldn’t imagine doing so until after I completed the procedure. I knew that he, an internal medicine intern at a hospital just down the street, would shake his head in disapproval and tell me that money’s not everything, that a good story’s not everything. Then he’d invoke medical jargon to make his case for what a bad idea this was. He’d remind me that it was possible (albeit extremely unlikely) that the fertility drugs could over-stimulate my ovaries and require me to be hospitalized, and that the retrieval procedure could (in even more rare cases) result in an infection that could affect my future fertility. I suspected that by reiterating the risks, my boyfriend could talk me out of it, and I wasn’t sure I wanted to be.

“Oh, and one other thing,” Veronica said. “The day of the retrieval procedure is when you’ll get your check.”

I’d already done the math. The $8,000 payment I would receive for approximately fifty-six hours of my time worked out to just under $150 per hour—ten times more than any employer seemed to think I was worth. My boyfriend’s objections aside, I’d have to give this some serious thought.

On my subway ride home, I sat across from a woman who looked seven or eight months pregnant. I stared at her swollen belly and then followed its curve up to her glowing cheeks. She noticed me and smiled. I grinned back. Then I tried to imagine if the exchange happened a few months down the road, after I underwent the procedure; I wasn’t sure the moment would have felt so sincere. Would I wonder if it was my baby the woman was carrying? Would I wonder this about every pregnant woman whose path I crossed, and later, about ever baby, every toddler, every child? Was that anxiety worth $8,000?

It was certainly a lot of money for not a lot of work. In Canada, Australia, and parts of Europe, offering money for donor eggs is illegal. In Germany, Norway, Sweden, and Japan, the use of donor eggs in IVF is forbidden. The United States is, in fact, the only major country with no national policy on IVF, even though nearly 41,000 children were conceived via IVF in the United States in 2001—6,000 from donor eggs. The United Kingdom, on the other hand, not only has a policy but a federal agency—the Human Fertilization and Embryology Authority—that, among other things, sets caps on payments to egg donors.

In the U.S., the price for donor eggs has increased tenfold since the mid-1980s, when donors received about $250 to compensate for their time, transportation, and other incidental costs—about $4.46 per hour, a dollar and change above minimum wage. Donating back then didn’t have a significant financial incentive; most early donors acted out of altruism. Most donors still act out of altruism, Veronica led me to believe, but as time passed and the demand grew, donors began to expect compensation not just for practical sacrifices but also for the emotional burden and medical risk associated with donating.

Today, payments average between $1,500 to $3,000 dollars, depending mostly on the location of the clinic. In major metropolitan areas, payments are higher. Highly desirable donors—Ivy League students, models, athletes, accomplished musicians, and so forth—are frequently promised even more. Offers of tens of thousands of dollars are not uncommon, though some infertility experts maintain that advertisements like the ones Lily noticed in the Yale Daily News are usually not legitimate. Women who respond are often told that the ad has been filled but that other recipients are still seeking donors. These other recipients, however, always seem to offer substantially less money. As an Ivy League graduate living in Manhattan, I would be compensated well above the national average for my eggs. Given my doubtful professional situation, it felt nice to have someone recognize my worth, even if she was a faceless IVF recipient.

Two weeks later I was back at the clinic, this time to meet with a psychologist. Dr. Jones (as I’ll call her) led me to the same office where I’d met with Veronica. She sat down, crossed her legs, and set a white legal pad on her knee. “So, what can I do for you?” she asked.

I was taken aback by her question. I explained that I’d met with Veronica about the possibility of becoming a donor, and, as I understood it, this was the next step. Nodding, Dr. Jones explained that donors usually undergo physical evaluations first, but after looking over my application, she wanted to meet with me.

“Do you have any concerns about being a donor?” she asked as if she already knew I did. I could have easily recited Veronica’s speech about the virtue of egg donation, which I could relate to now more than I expected I ever would, but I remembered my reaction to the pregnant woman on the subway and decided to be honest. I told her I worried that I might suspect every pregnant woman I saw of carrying my baby.

“That’s a very real concern,” Dr. Jones said. Although my future feelings could not be predicted, she said, how I ultimately felt about donating was likely to be related to how I now understood my role in the procedure. Donating was more likely to be a positive experience if I believed I was giving a piece of myself for the possibility of life, and if I believed that my involvement ended there.

“What do you mean by ‘possibility’?”

“Success rates for in vitro fertilization with donor eggs are about fifty percent,” she said.

I was shocked. I knew that success rates for IVF with a woman’s own eggs hovered around thirty percent, and I knew that using a donor’s eggs increased the chances of success, but I assumed the increase would be more significant. To my surprise, I was also relieved. After the procedure, it would be just as likely that someone wasn’t carrying a child conceived from one of my eggs as that someone was.

Donating might be a negative experience for me in the long run, she added, if I believed a child with my genes was my child.

“I wouldn’t want to find the child and claim it,” I clarified. “It’s just that there might always be a latent curiosity.”

Dr. Jones suggested we table this issue and move on to my family history. She asked about the abnormalities in my parents’ histories documented on my application (both of them). I told her the details without much emotion; after all, I’d recited the information at nearly every doctor’s appointment I’d had over the last decade. I told her that my mom had battled cancer twice, first of the breast and then of the cervix. Dr. Jones seemed alarmed, both by the rarity of those two types of cancer afflicting the same person and by my nonchalant recounting of it. But to me it was just an empty fact: I didn’t remember my mom being sick, and now she was completely fine. When Dr. Jones asked if there was anything she should know about my dad, I chronicled, just as flatly, that he’d become addicted to cocaine when I was two, divorced my mom when I was three, lost his law license when I was ten, was homeless for a while, and then, when I was seventeen, became a used car salesman.

“Is he clean now?”

“Well, he’s held the same job for five or six years, so I think he probably is. But you never know, do you?”

Then Dr. Jones wanted to know about my sister. I mentioned her allergies and her attention deficit disorder, for which she’s been treated since third grade. Dr. Jones wondered aloud whether my dad has a learning disability too.

“My mom’s always suspected he does,” I said. “His mind jumps a lot. But maybe that’s because of the drugs.”

“Could he be depressed?” she asked.

“Maybe,” I conceded.

Dr. Jones’s pen stopped moving. She shifted in her seat and sat staring at her legal pad.

“I don’t think …” she began, her voice low, “that you’re going to be able to help us.”

She paused for what felt like minutes. “It’s really too bad,” she continued, now looking me in the eye. “We would have loved to have had you, but if there’s addiction or learning disabilities in two generations, well, it’s a liability issue for us.”

I sat on the couch, stunned.

“If your dad had just dabbled in drugs we could maybe overlook it,” Dr. Jones continued, “but from when you were two years old to five years ago, and maybe still ongoing—that’s a prolonged problem.” Drug abuse is linked with ADD, and if both are heritable.

I would also learn from the medical journals that my dismissal, though not legally necessary, wasn’t unfounded. Research suggesting an influence of genetics on addiction is amassing. In March 2006, for instance, the British Institute of Psychiatry released a study that found that variations in the genetic code for the DAT protein, which controls dopamine levels, can cause a person to become addicted to cocaine more quickly. According to these findings, if the suspect gene were passed from my dad to me, I would be fifty percent more likely than my peers to become dependent on the drug. Other studies have produced similar results. I stared blankly at my computer’s screen. This discovery stung worse than the rejection of my eggs.

Over the next few weeks, that statistic haunted me. A baby born of my genes would be fifty percent more likely than average to abuse cocaine. Though my boyfriend and I were far from thinking about having children of our own, I wondered how he might react to this news. Would he pull out now, knowing he didn’t want to have kids with someone whose DNA was so flawed? He, of course, could have children with someone else, but I would always have these genes. This was my lot. I wondered whether it was irresponsible of me to even consider reproducing.

One day, out of nowhere, it occurred to me that I could have lied. The clinic’s screening process was based on information provided by me. My prior medical records weren’t required, and neither were those of my family. Maybe the clinic’s staff wanted me to lie. Maybe that’s why Veronica had me fill out multiple applications and why Dr. Jones asked me to recite the family history I had already listed twice. Maybe they were waiting for my story to change, and maybe I missed the cue that it was supposed to. After all, Veronica made quite clear in filling the blank boxes of my paternal grandparents that veracity was beside the point.

Maybe Dr. Jones and Veronica knew that heredity isn’t all there is to addiction. Variations in my genetic code related to the DAT protein, if I do indeed have them, might make me more susceptible if I tried cocaine, but I haven’t. I haven’t because addiction isn’t just about an abnormal gene, it’s also about the factors that make drugs tempting. Disorders like ADD and depression can influence a person’s decision to turn to drugs, as can environmental and social factors, which also influence drugs’ availability. If addiction is about nature, it’s just as much about nurture. My dad and I—genetically speaking—were equally susceptible to addiction, but he became entangled with drugs while I didn’t, probably because his parents kicked him out when he was sixteen, and remained estranged from him to their deaths. I, on the other hand, was guided through childhood and adolescence by my mom, a positive role model who offered sound parental guidance. That, it seemed, has made all the difference.

But science is cold, definite. Genetics play a role in drug abuse, period. Nurture is unpredictable. It’s the job of Veronica and Dr. Jones and the clinic’s geneticist to play the scientific odds. It’s the statistic that matters, and a baby born of my genes would be fifty percent more likely than average to abuse cocaine. For weeks, that statistic echoed in my mind every time I passed a child in the park, on the sidewalk, or riding the subway. I thought, too, of how it felt to be rejected for a job that I’d nearly thought I was too good for.

If troublesome genes are to be shunned, a scientist might forever doom the future of the Bonanno crime family based on whatever genetic abnormality makes a person more likely to lead a life of crime. But science doesn’t always have the last word. After publishing Honor Thy Father, Gay Talese allocated some of his royalties to the Bonanno children. One of them used the money to go to medical school and is now a successful physician. His story would be unremarkable, discouraging even, to those who think genes are destiny, but to a writer—or me—he’s a goldmine, because in literature it’s the people who defy the statistics that count. This is the way of thinking I prefer.

Author’s Note: Shortly after writing this piece I stumbled onto a list of thirteen characteristics of adult children of alcoholics; characteristics that also apply to the children of drug addicts. I was skeptical at first. How many people aren’t either extremely responsible or extremely irresponsible from time to time? Who wouldn’t, at some point in his or her life, proclaim that they have difficulty with intimate relationships.  But I couldn’t ignore the fact that every characteristic listed seemed to apply to me. Some were more true than others of course, and some might have been true in the way that the intuitions of fortunetellers are. But I saw too much of myself in the list to laugh it off completely, and I realized that my desperate pursuit of experiences about which to write, like donating my eggs, was silly. I already had a story to tell. I’ve read memoirs about families affected by substance abuse, but never about the longer term affects on various family members’ personalities and the life each ultimately chooses to lead. I’m working on a memoir now. Writing this piece helped me get there. 

Alexis Wolff holds a BA from Yale University and an MFA from Columbia University. She has previously been published by the New York Times, the Los Angeles Times and in the Best Women’s Travel Writing anthology, among others.

Brain, Child (Winter 2007)

On the Cutting Edge

On the Cutting Edge

By Laura Amann

cuttingedgeFrom a photograph on my desk, my daughter’s face peers out at me. Her eyes are crinkled; her chicklets-perfect teeth are held by a wide grin. Her dark hair curls in fat, sausage ringlets. She is wearing a princess gown. She is five.

Periodically, I look at that photo and close my eyes. I do the same thing when I come across her papers from grade school, with the hearts on top of the i’s and the puppy dogs doodled in the corners.

Today her long, glossy hair has alternately sported thick dreadlocks, been chopped short and bleached an unnatural blond, and been dyed with streaks of blue, green, or pink. Her brown eyes are now muted by a ring of heavy, thick, black eyeliner. Her ear- lobes are stretched and weighted down with huge earrings.

She is still stunningly beautiful and this makes me sad.

It breaks my heart because I know all of her attempts to be different are really a cry of pain. She has struggled with mighty demons as she has wrested her way through adolescence.

Depression runs through the women in my family like a thick, pulsing vein. It strangles our self-confidence, saps our energy, and leaves us limp and lonely. I have watched my sister and mother struggle with it. I have fought my own conflict. I have listened to stories of my grandmother and great-grandmother taking to their beds.

But when I learn that she is cutting, my stomach recoils and I am physically sick—nauseous and clammy as if the flu has suddenly possessed my body. Soon, she starts wearing long sleeves all the time or a thick crowd of bracelets to hide her scars. I learn she has a secret blog and through a concerned friend of hers, I log on. It is so dark and disturbing that I lay awake at night thinking of what I’ve seen.

She had already been seeing a therapist and a psychiatrist for a year when the cutting starts. Now we up the ante. Intense, twice-weekly dialectical therapy, coupled with weekly visits to the psychiatrist and regular group therapy sessions take up much of her time. She visits the school social worker almost daily.

I suspect that she began cutting as a way to cultivate an image she wanted to convey: that of a hipster with a dark and daring soul. But the allure of the cuts quickly spiraled out of control, becoming its own form of addiction and destruction.

When she first came to me three years ago, crying and scared about her mood swings, I was concerned but not shocked. “I know I should be great right now,” she said. “But I just want to be by myself and be sad.”

But who as a teenager hasn’t felt some depths of despair? I remember those teenage feelings of angst and anxiety only too well, which is why in the beginning I was eager to direct her to a nutritionist or a new exercise group. Good food! Brisk air! Let’s just drum those bad feelings right out! For months I optimistically bucked her up, nauseating myself in my own faux cheeriness. I clung to her smallest request, as if an order of Kung Pao chicken could make her unhappiness disappear. But I also had a friend commit suicide in high school and I know the edge of the cliff can spring up quicker than expected.

Soon I learn that I can’t leave her by herself. I scrutinize every outfit. Grab her wrists. Take the sharp objects and prescription medications with me when I leave the house.

In the midst of her chaos, we transfer our home movies from videotape to DVD. The process requires it to be done in real time with the machine playing back what it is recording. I’m mesmerized. There she is as a baby, our first child, and her dad and I are completely in love with her. Her every move is recorded, nothing seemingly unworthy of the camera’s attention. As a toddler and a little girl, she is captivating. Her clear eyes gaze at the camera, lovingly looking at us. She is the ring leader, the head of family plays and sing-a-longs.

She orchestrates her siblings’ moves with confidence and assurance. I can’t stop watching, looking for some sign of the sullen girl who lives with us now.

Her clothing styles change as rapidly as her moods. First, she shed the trendy shirts and skinny jeans for men’s over-size clothing. That look gave way to black rock concert T-shirts which gave way to ’60s style bell bottoms and fringe vests. Each personality adjustment comes with a slew of other refinements. In addition to the new style of clothes, she adapts a new makeup look and a new personality design for her bedroom.

She draws all over her walls. Beautiful swirls, elaborate scrolls of flowers, inspirational quotes, and images. It’s stunning. She takes one wall and creates a vision board, filled with images she finds inspiring—yoga poses, New York City, Janis Joplin, Bob Dylan, Jimi Hendrix and plenty of other tortured souls who killed or nearly killed themselves with their creativity.

She silently glides out of the house. She has a new group of friends. Earlier, when she didn’t have friends and spent hours and days alone in her room, I worried. Now when she’s out with these new friends all the time, I worry. She tells me to relax, assures me she’s fine, her friends are what she needs right now.

I don’t trust this new group of friends, but without proof (and I desperately search for proof), I feel powerless as she slowly slips further away. Later I will learn that my suspicions were correct; she was engaging in high-risk behaviors on many levels. But I want to believe her. Desperately. Even though the line of pills I need to dole out to her every night is a constant reminder that she is anything but okay.

Eventually, I get a call from the social worker at high school, her voice belying her news. She tells me that there was “a setback” last night. I speak the language and know what that means. The social worker sent her to the nurse and when I go to pick up my daughter, I hug her and tell her I love her. She gently lifts her sleeve and I am stunned and heartbroken at the large hospital-like bandage covering the length of her arm. I am scared to see what lies underneath. Scared to see what she did to herself while I slept, oblivious, in the next room. My mind cannot go in the direction of the darkness she clung to last night. But I will fight for her.

*   *   *

A few hours later, we are on our way to check her into a psychiatric hospital; we stop for coffee and bagels—black for me and a coffee/hot chocolate/whipped cream concoction for her. We order bagels as well because, well, we’re hungry. And I’m not sure of the protocol for checking your daughter into the psych ward. Etiquette books don’t cover such topics.

I look over at my daughter, my first-born, my amazing girl, and try to imagine how we got to this point where she needs to spend time in what is euphemistically dubbed a behavioral health center. What words can I say right now that will make this okay? Do I optimistically give a pep talk about new beginnings? Do I break down crying like I want to? I’m hoping she recognizes the symbolism and love represented by the Dunkaccino. I sip coffee and chew my bagel despite the curious lack of salvia in my mouth. It’s almost painful to swallow.

She seems oddly calm, almost relieved. I fall squarely in the devastated and terrified category. I want to prolong the time I’m with her and perhaps commemorate the moment. I come up with a soppy, heartfelt, caffeine-laden toast to the future.

*   *   *

The adolescent psych ward is both everything I imagined and nothing I expected. The waiting room is full of people just like me, parents wearing the same expression of exhaustion, worry, and a tinge of relief. We don’t make eye contact; there is no need—it’s all too unbearable and we know it. And we are the lucky ones. In the hallway outside the waiting room, patients are being wheeled in, strapped to gurneys followed by familiar-looking parents. By familiar, I mean normal. Someone I would see at the grocery store. I don’t know why I find this surprising.

The kids getting checked in all wear a haunted, blank expression. The girls have the same black-rimmed, heavy eye-lined eyes and nails covered in black, chipped polish. Their clothes are grungy and baggy. The surprise is that my daughter fits right in. She looks just like them.

How had I not seen that before? In my quest to keep her out of the hospital, had I waited too long? How could a hospital stay possibly undo years of dark, deep depression? Where had my little girl gone who was on the soccer team and swim team, and loved going to church and hanging with her family?

We pass through three sets of locked doors before checking her in on the self-harm/eating disorder unit, where skeleton-like bodies with haunted eyes peer at her above their jutted collar bones. Quickly, these become familiar faces. A cross between a hospital ward and a bland dorm hall, the unit has both a nurse’s station and traditional dorm furniture (albeit, bolted to the wall). We have to relinquish everything from underwire bras to spiral notebooks and anything with staples.

This isn’t a retreat. There are no colorful posters or inspirational bulletin boards, encouraging residents to “hang in there, baby.” The nurses and clinical staff are professional but not sympathetic. I want them to smile or reassure me I am doing the right thing. But they don’t. They hand me forms to sign and packages of information, none of which are stapled.

The following days are a blur of phone calls to relatives, the school, teachers, doctors, therapists, insurance, and a few close friends. It’s exhausting and emotionally draining and every conversation seems to take an hour. I have three other kids who are scared and concerned. The younger two had no idea of the extent of their sister’s depression. We take a mental health day.

I spend the next week narrating my life, one step removed: I am folding the laundry while my daughter is in the psych unit. I am answering work email while my daughter is in the psych unit. I am driving a carpool while my daughter is in the psych unit.

I feng shui her entire room, cleaning, scrubbing, and airing everything out. I wash and refold her clothes, dust her shelves, take down the dark tapestries which cover the windows and buy a plant.

My feelings slide on a scale ranging from anger to relief to hope. I’m angry that it’s come to this—angry I didn’t do more sooner, even as I recognize that there was nothing more I could have done.

But there is also relief. Relief that she is in someone else’s care. That for a short while I won’t have to check on her constantly. That my heart won’t race going up to her room when she is the only one home. That I won’t need to look out the window waiting for her to come home.

That I can briefly stop questioning the medicine, the therapy, her psychiatrist, her school load, me, her father, our family—always wondering where we went wrong. Someone else can do all of that now. It is out of my hands for now.

And of course, there is hope. Hope that she is finally getting the help she needs. Hope that perhaps her future will be returned to her, a future where the possibility of college and a life outside of home exists.

We are periodically allowed one-and-a-half hour visits where we sit on uncomfortable chairs in a hallway near other patients and nurses. She is lonely and scared at first (which is hard) then excited and almost happy to have met so many people like her (which is maybe even more difficult) and finally desperate and anxious to get home.

We also meet for family meetings with other parents whose stories are just as awful as ours. And like my daughter, I feel an excitement and kinship with these people. Finally, someone else who understands the true struggle of watching a child battle demons.

Because the reality of mental illness is that it’s still extremely difficult to discuss. Those of us navigating the dark pathways are often too emotionally fraught to fight against other people’s assumptions or battle the stigma as we should. Many of us are too busy blaming ourselves as it is. And so the veil of silence continues. Who are we, the parents of children who suffer, who cut, who starve? Who among us shares this heartache?

When she is finally released, we walk slowly to the car and sit together for a while. She begins to weep. I hug her and cry with her. Then I ease the car into the road and begin the drive home.

*   *   *

The second time she is hospitalized it is less traumatic, but not easier.

She only made it a year before relapsing. After her first hospitalization, she participated in an outpatient program for an additional two months. She managed to keep up her coursework and return to her job. And to my relief, she moved away from her group of friends.

But if there is anything I’ve learned from this journey, it’s to expect the unexpected. Studies show that self-injury can be as addicting as alcohol and drugs.

The second time around, we are even more careful who we tell. My daughter’s illness is chronic and at times it can be life-threatening. And yet, her battles are fought internally, and sadly, we’ve learned that some people find it easier not to inquire.

My daughter, my husband, and I have each lost friends or distanced ourselves from people since the first round. Although we had told only a few people, we learned that the same folks who organize a chemotherapy support brigade don’t phone to check in. And the people who volunteer with the disabled don’t necessarily understand a psychiatric hospital.

But our family sticks together, at times straining at the seams. Before being hospitalized the first time, my daughter made me a CD (a mixed tape of love) and the haunting song “Beautiful Girl” by William Fitzsimmons swims through my brain in gentle laps.

Beautiful girl

Let the sunrise come again

Beautiful girl

May the weight of world resign

You will get better

Her doctors told us that the adolescent brain doesn’t completely stabilize until around age twenty-three. There is a good chance that she will age out of the cycle of self-injury and depression. There is also a chance that she will be fighting this battle the rest of her life. And so it’s up to me in the brief time she has left living at home and in our care, to make sure that she has the tools and knowledge to monitor her disease and keep herself safe.

For now that means supervising her medications, checking in with her daily, staying in communication with her school social worker and her therapist. And yes, ensuring that she is eating healthy food, drinking water, and getting exercise.

And sometimes it means simply ordering Kung Pao chicken on a bad night.

Author’s Note: Since this story isn’t mine alone, I showed it to my daughter before sending it into the world. Any hesitancy I had evaporated when she read it and encouraged me to put it out there. We’re hopeful we can assure someone who is experiencing a similar struggle that they’re not alone. Our journey continues, and although the path we’re taking remains murky, we’re both a lot stronger than we were when we started out.

Laura Amann is a writer and editor who mothers a brood of four in the Chicago area. Her award-winning essays have appeared in the Chicago Sun-Times, Brain, Child, Salon, and Chicago Parent. Her reported pieces have appeared in Your Teen, Scholastic Parent, among others.

Illustration by Mikela Provost

 

 

Family Portrait

Family Portrait

WO Family Portrait ArtBy Anne Spollen

I am a recent refugee from the life I planned since I was twelve. For the last twenty years, I have been a mostly stay-at-home mom.  I was the kind of mom who read to my kids pre-natally, breastfed, pureed baby food made from organically grown community supported agriculture, and dreaded their inevitable discovery of soda. I carried not only Band-Aids in my purse, but Neosporin and dry socks.

My kids had music lessons and birthday parties, religious instruction, family connections, parents who loved them. They had a community they were part of; they had success at school. They had safety and health and friends in abundance.

My dream had been delivered; here they were: bright eyed and bright, creative and thriving. For some people, life never gets this good and I knew it. I thanked Providence every day for my luck and love with these kids.

And then it all changed.

One spring day in the eighth grade, my middle son began drinking with a group of new friends. There was no warning: the kids arrived on bicycles at my front stoop in the same way a summer storm arrives. They had squeaky voices and acne. The boys seemed harmless. They told me they were going on the bike paths and I watched my son leave with them. When he came home, I smelled the alcohol on his breath.

By late summer, the scent of weed drifted from his room. Pills arrived as the leaves changed. Then he changed. He grew agitated and violent. He struck me when he didn’t get what he wanted.

I would think back to the days before the boys on bicycles arrived. How had this happened? And how had it happened so quickly?

We hired counselors and had him hospitalized. Sometimes the calm reigned for a few weeks, then the cycle would begin again. The drugs created strange behaviors, which led to multiple diagnoses. Some doctors said he had major depressive disorder; others pronounced him bipolar. They gave him pills. I had never heard of pill-chasing behavior, but I quickly came to see that my son could manipulate psychiatrists into giving him drugs. He knew the names of the pills he wanted and the symptoms he would feign to get them. Ultimately, he had no psychiatric illness aside from addiction.

A former honor student, my son began failing subjects. His intellectual energy was utilized in creating ways to obtain drugs. He was good at it. Money disappeared. Jewelry. Then trust and communication. He hid his phone and his thoughts. I would look at my son, only fifteen years old, and his eyes would glint in a way I had never before seen.

Then came the bombshell: his older brother told me that their father, an alcoholic supposedly in recovery for years, had participated in the first drinks with him back in the eighth grade. On that spring afternoon, they bonded over their mutual addictive behaviors.

My twenty three years of marriage ended as his father sheltered our son’s behavior. He allowed him to leave school at fifteen and take online high school. I fled to a New York apartment with my fourteen-year-old daughter. It was a refuge. From there, I would try to find a way to help my son.

One night after the divorce, I was cancelling email accounts in both names, my ex-husband’s email account accidentally opened. That’s when I saw the summons for my son’s arrest.

Arrest? I had not been told.  Addiction thrives in secrecy.

This boy, a former National Honor student who had played in a Philharmonic band at the age of thirteen, had three felony counts against him.

They each involved heroin.

I used to think of heroin along with an image of poverty, of disenfranchised individuals who slept through rainstorms on city sidewalks. But of course, like any economic system, drug dealers need clients – and theirs tend to die young. Affluent teens of suburbia have stepped in to fill that vacancy. My son was one of them.

My son. I shut the computer off and sat there for a very long time after the reading the words of the arrest. I wished for someone to come into that living room and make everything better: I wanted Mary Poppins with a pocketbook full of songs and suboxen.

I spent that night looking through my son’s baby pictures, through his drawings and cards that he had given to me over the years. I Googled what type of person becomes a heroin addict until I realized I was looking for a reason so I could stop blaming myself. But there was no Neosporin for a heroine addiction, no amount of Band-Aids or dry socks.

I called his father. “What arrest?” he asked in a happy sing-song voice, despite the fact that the arrest summons was in his email. That is the voice of denial: it’s like living in a margin somewhere between surrealism and Dr. Seuss. Addicts and alcoholics live in that space where nothing is real; if it’s not real, it doesn’t have to be addressed.

My son, still a teen, is a heroin addict. I write that sentence and it is dream-like to me. Some nights I still Google heroin addiction. The experts state over and over that addiction is genetic. Still, I know this only intellectually; my emotions haven’t learned that yet.

I study addiction statistics. I go to open meetings for any kind of addiction. I want to know why doctors dispense scripts for hydrocodone as if it’s Tylenol when it is routinely listed as one of the three most addictive substances on earth. My son has told me that he first became addicted to hydrocodone, or Vicodin. “It was love,” he said. “It was all I ever wanted to feel.”

These pills change brain function. The drug makes itself the number one priority to the brain; life is second. Its use stops the creation of positive feelings. The user needs more and more of the drug. Tolerance builds. Then hydrocodone turns nastier. It no longer brings any type of euphoria; it only relieves the unbearable symptoms of withdrawal.

But pills are expensive, between twenty and thirty dollars a pill. Heroin runs about four dollars a fold now and does the trick. And it’s running through American high schools with the strength and speed of a rumor.

I got my son into a rehabilitation facility several states away. I cried as the plane lifted off because I knew he was on heroin even as he sat in his seat. But he was safe. I could breathe. Until the director of the facility called to let me know that my son’s  father had sent a plane ticket back two weeks into the program. The director had wanted him to stay there for ninety days, then go to a halfway house. But my son was eighteen by now, there was nothing I could do.

At least after rehab, we could talk, my son and I. It was guarded conversation, but we could connect on some level. My son is trying to stay clean now. Involved in a program and meetings, I call him each day to make sure he has not relapsed, that his heart is still beating. I have to will myself not to think about him all the time or I wouldn’t be able to function. I have moments now where I do not think about him. I can’t afford to.

Two days ago, my young teen daughter went to visit her father and brother. When she came home, she was clearly under the influence of opiates. She refused a drug test.

Anne Spollen is the mother of three children. She has published numerous essays, poems and stories, in addition to two young adult novels: The Shape of Water and Light Beneath Ferns. She currently lives in Staten Island where she teaches college and is working on a book of essays exploring the effect addiction has had on her family. She can be reached at her website: annespollen.org

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Making Amends

Making Amends

mystic lolaI haven’t had a drink in 18 months.

When a guy cops to recovering from addiction and he has two kids, it’s tempting to suppose many forms of unspeakable horrors, which I want to address with finesse because, though my story lacks a particular brand of Hollywood drama, I’m also not looking to minimize the impact that substance abusing parents have on their children. It can be insidious and subtle without being bloody and newsworthy.

So no, I never hit my kids or screamed at them (all that much; never drunk) or called them a bunch of horrible names that crippled their self-concepts, making it necessary for them to seek relief by perpetuating the cycle of abuse or what have you. Truth be told, my kids kick ass. Of course I can’t be certain but they don’t appear to be bogged down by any more self-loathing than your average self-loathing young person. Most of my adult life has been spent, to some varying degree, in recovery so the kids have rarely even seen me drunk and, when they have, I was more inclined to play with them than ruthlessly destroy their self worth like the drunks on TV. So there you go. No terror. No blood. No cops.

But those symptoms—that outward craziness—are only various manifestations of the singular problem that serves as the stubborn root from which addiction and all its consequences flow: selfishness. The tenacious deep problem of the addict—being enamored by and trapped within the maze of self—is, in truth, the problem he seeks to treat with his array of addictive substances.

My biggest concern, in terms of parenting my children, isn’t the fact that I drank to excess and often did ridiculous and dangerous things. I mean, sure, that’s a worry. But the much more crucial issue at hand is the extreme emphasis on self inside of which I lived, necessitating my alcoholism—yes—but worse yet? Setting an example of self-absorption as the model by which my children learned what it meant to be a person in and of the world. However, what’s done is done—an easier cliché to write than embrace—and the recovery process does include a step that attempts to repair the damage of the past to the extent that that is possible. Its focus is on amends. And so, rather than focusing on the damage, I want to here cast my eye on amends. In terms of being a poor model for my kids regarding how to be a person in the world, how do I repair that damage? How do I make amends?

This is a much more enormous task than telling them I’m sorry.

The answer for me (provisionally, because my understanding and relation to these issues keep changing and growing) is twofold: first, recover from alcoholism, which, above and beyond the cessation of alcohol consumption, entails a Copernican revolution in terms of how I relate and interact between my self and the world. And, second, have this new way of interacting and relating between my self and the world bear directly on the way I interact and relate to my children.

To posit something as lofty as “a Copernican revolution in terms of how I relate and interact between my self and the world,” amounts essentially to fancy writer language for not being so damn selfish. The trick, indeed the whole goal of recovery to my mind, is to constantly search the sky for new stars to circle, to abandon the default solar system of selfhood in search of new suns to orbit. Always. Ceaselessly. Relentlessly. Let your sun burn out or explode. Forget yourself.

But how does this new way of interacting and relating between my self and the world bear directly on the way I interact and relate to my children in an effort to make amends? It’s simply this. I need to take the time to imagine myself as a father from the perspective of my children. I have to imagine that I am my children. I have to be my children. Parenting is too often mistaken for me and my opinions about what’s best for kids inflicted on my kids. This is not to say they don’t need guidance; they do. But they also need a dad who’s willing to enter the imaginal fray of wondering how they see, how they feel, what they need, and what they want. And as a result of those meditations, they then need a dad who will accommodate them from their perspective. To be and act like the dad that they want as opposed to just doing what I think is best.

The distinction is subtle, but the results are enormous. It’s the difference between being sorry and making amends.

Because I Will Always Do It Again

Because I Will Always Do It Again

0-4For me it’s never been about here or there; it’s all in the movement from and to, the freezing and, my oldest love, the melting.

Though I can’t, in a general way, believe much of anything, I especially couldn’t believe that you were IN your mom’s tummy, floating around in that complicated liquid. I would squint at her belly and imagine—because you were not yet steeped in discursive thought and unable to distinguish yourself from otherness—that you were somehow the liquid or the liquid was somehow you or that you and the liquid dwelled seamlessly together in a place ontologically prior to your distinction, and I loved you with an abandon that bordered on madness.

The first time I drank I blacked out and remembered oblivion. Swallowed, lost myself, in the passage of time.

Chan master Furong said “The blue mountains are constantly walking.” David Foster Wallace said it was within our power to experience things “as not only meaningful, but sacred, on fire with the same force that made the stars: love, fellowship, the mystical oneness of all things deep down.” And Adam Duritz, when referring to a black-haired flamenco dancer, sang “She’s suddenly beautiful / Well, we all want something beautiful / Man, I wish I was beautiful.” You may not understand why I juxtaposed those three quotes in the same paragraph and that’s okay. Not knowing is part of it. Not knowing is how I know I will do it again. Because I always do it again.

Ever since you could not be distinguished from liquid—and probably before—you mattered. It’s more than I can fathom to imagine you melting. Now if you’re reading this closely enough, you’ll say “But Dad, a contradiction—” and, yes, that’s right, because you are sacred and beautiful and it’s illogical, yet possible, to love someone with the same force that made the stars and to simultaneously be so, so sorry. I am never not sorry.

I have watched you meet people and matter to them. They see you, smile, say hello, and—from there—from not knowing each other and crossing the bridge to mattering, you begin to mean something to one another. You change each other. Melt a little. Become mountains that walk. It’s during these times that I remember the idea of you inside your mom’s belly and yet, here you are, mattering in the world, and a tension twists my skin and my heart is a piece of ice that pines for the sea. I love you. I love to melt. Man, I wish I was beautiful.

There is something about you, little girl, that commands my attention and paying attention is a giving of one’s self and, in this giving, an inquisitive mind might find the bones for a definition of love. I become absorbed in your laughter. I lose myself in the rambling narrative of your animated storytelling. Where does the time go? You make me wonder about the blurry place between (or prior to?) my eyes and you, where one of us ends and the other begins. It’s bedtime. You are reading me a story and I marvel at the strange reality of your eyes as they skim just ahead of the sound of your chirpy voice, fluently. The story happens. But we’re in your bed, two ice cubes floating in your room. The world outside throbs with innumerable manifestations of the same old stories. People coagulate into the matter of love. Others melt away in the confusion of tears. Mountains crowd the sidewalks. Between places, in taxis that blow rude horns, people reflect on themselves and wish they were beautiful. Somewhere, a drunk looks up, beside himself, and speaks to the moon. Candles burn in mysterious windows. Wax melts. And so do we, you and me, melting into the story you read. There’s a castle, a princess, and something difficult and urgent that must at all costs be done. In spite of a great big world that relentlessly happens and happens on fire with the same force that made the stars, we’re lost in our story, swallowed in the mystical oneness of all things deep down.

And then you, gone, lost at sea, are sleeping. I sneak out the front door, sorry, to do it again. I always do it again.