When ADHD Goes to School

When ADHD Goes to School

By Keaghan Turner

Converse C w colorIt’s about that time in the semester when the first paper due date looms on the syllabus, and college students start pulling out their ADHD. They approach the lectern after class and spill their psychological guts. About their quiz grades … about the paper length … about that first novel we read … about their paper topic.

Eventually and awkwardly they get to the point, trotting out what I know is coming: They have ADHD. They might need an extension, they’re planning to come by office hours, they can’t remember what they read for the quizzes, they had a tough time getting through the whole book, their doctor is adjusting their Ritalin or Adderall or Vyvanse dosages. “Yeah, yeah, yeah,” I would think. “If I had a nickel,” I wanted to say. What a pop-psychology diagnosis! What a crutch! I shook my head in academic dismay over such a Made-in-America “disorder.” How could so many parents be hoodwinked by the big pharmaceutical companies? Maybe if they made their kids read a book once in a while instead of allowing them to play video games for hours at a time they wouldn’t have ADHD. What is the world coming to when college kids need medication to help them read, write, and study? Why are they in college if they can’t do what kids are supposed to do?

Turns out, ADHD is real. At least, it is at my house. And no one was more surprised than me. I wound up with a toddler who might be down the street—naked—before I realized he had left the kitchen, who couldn’t be trusted not to draw blood on the playground, and who broke my nose once (at least) by throwing his aluminum thermos at me from point-blank range. “This is not normal!” I cried, holding an ice pack to my nose. My little boy McDiesel faces off with Escalades in the middle of the street, he cannonballs into the hot tub, he smashes Lego Starfighters—with no provocation or warning—that his big brother has painstakingly built. He has shattered two flat-screen tvs and one MacBook, pulled a leaf of the kitchen table clean off its hinges, and reduced a 1920s mahogany dining room chair to sticks. He is fierce. Feral.

My mother said it was lack of discipline. Friends said it was the Terrible Twos (and then Threes!). Doctors started saying things like it was too early to say for sure if it was ADHD, and that we wouldn’t want to jump to the conclusion that it was ADHD.  My husband didn’t know what to say. I didn’t say anything. (I was shocked: Why in the world were they talking about ADHD? What could my kid breaking my nose have to do with writing a paper? Plus, I do everything right—I recycle, I clip box tops, I have a Ph.D., we have good genes! Nothing could be wrong with my kid.) Everyone said, “What? ADHD? He’s just … active.” or … just impulsive, just curious, just energetic, just willful, just physical, just fearless. Check, check, check. Almost every word matched the Child Behavior Checklist we filled out at the pediatrician’s office, then at the behaviorist’s, the child psychiatrist’s, the occupational therapist’s, and the chiropractic neurologist’s.

We were all right, of course: it wasn’t normal. That is, it wasn’t “typical,” but it was “just” something: textbook ADHD. A severe case, but still, according to our Beloved Behaviorist, it could be worse. I’ll have to take her word for it.

And now we’re sending McDiesel to school. Real school. Public school. True, as my husband says, finally we don’t have to worry (much) about him getting kicked out the way we did at his preschool. But being part of the school system seems much more serious. They have official paperwork for this kind of thing. There, under “Asthma,” is where we check the box. Now is when we label him. Until he goes to college and will label himself, approaching a lectern and saying that he has been having trouble with the material, that he needs help understanding what exactly the professor is looking for, that he has ADHD.

In the meantime, McDiesel’s new kindergarten class newsletter explains the breakdown for daily behavior reports, which, in the past three years his big brother, Typ, has been in school, I have never paid much attention to before:

Happy Face

Squiggly Face

Frowny Face

These three options seem at once overly simplistic and completely adequate. The school day is long and most of McDiesel’s days are filled with happy, squiggly, and frowny faces in different combinations. (Aren’t most kids’?) Every day is a behavior grab-bag and slim chance the Happy Face is going to take the day. McD’s a Squiggly-Face kind of kid, after all. Just textbook ADHD, as our Beloved Behaviorist would say. His happy-face behavior lights everything up; his frowny-face behavior is impossible to ignore and difficult—in the space of a mere six hours of almost constant contact—to forget or overlook.

On the first day of school, McDiesel proudly comes home with a Happy Face and a note that he had a “great” day. Oh, I think. Maybe it won’t be that hard. Maybe he won’t need medication. Maybe we won’t begin filling out Individualized Education Plan paperwork. Maybe he can behave for six hours. My anxiety ebbs. The second day, he hops off the bus and pulls out his chart—obstructing the bus doors—and thrusts it in my face: “Squiggles!” he pouts. Attached note reads: “Sassy!” (Also a deceptively adequate measure of behavior). My anxiety flows. Next day, I take necessary precautions. I dress him in an overpriced preppy T-shirt, madras shorts, and Kelly green converse chuck Taylors. The strategy is to distract Mrs. W. with cuteness. Can she possibly give a Frowny Face to a kid who looks so stinkin’ good? Alas, yes. As if on cue, confirming my sense of some cosmic inevitability, the third day of school, last Friday, brings the dreaded Frowny—a face that has never before entered the house in the two years our family has been at this elementary school so far. (Big brother Typ—wide-eyed—gasps and avoids contact with the paper altogether.) Mrs. W., the teacher I have special-requested, provides a short laundry list of ADHD symptomatic behavior alongside the Frowny: distracting others, talking during instruction, laughing while being disciplined. My anxiety flows some more, approaching tropical-storm categorization. (Come on! I think. What about the Chuck Taylors?)

McDiesel sulks. Things had been going so well. Behavior seemed to be on the upswing during the summer—to the point I was crediting 45 minutes of Occupational Therapy a week for working an almost miraculous transformation: Maybe some beanbag tossing and a sensory tunnel really can undo ADHD! Now OT seems useless. McD seems doomed to a Frowny Face-filled kindergarten year. All of the statistics about learning disabilities, poor academic performance, and social difficulties jockey for position among my myriad anxieties. I sulk.

I spend all weekend promising to come to school for lunch, reinforcing the extra-special milkshake celebration we will indulge in if Monday sees the return of the Happy Face, and even madly agreeing to a trip to the Target toy aisles (negotiated by opportunistic big bro Typ) as a reward for a week’s worth of Happy Faces.

I drive to school Monday, quizzing McD on how to earn a Happy Face (“Listen to Mrs. W.”) in case he might have forgotten or tuned out any of my coaching sessions.

Then Monday afternoon comes and the cosmic forces have realigned: McDiesel has earned a Happy Face with a note that he had a “way good day!” My anxiety is checked, the tropical storm dissipates. We head out for vanilla milkshakes.

Now I’m worried I might have been too lax this week in continuing the behavior pep rally. Yesterday, I drove up hopefully to the drop-off point in front of school. Carpool kids and big brother Typ hop out with waves and smiles. McDiesel unbuckles and acts as if he’s about to do the same. Then, he doesn’t budge, wants me to walk him in, holds up the entire drop-off line, and dangles halfway out the open car door. Frantically (and I hope not too sharply) I call Typ back from the school entrance to grab and drag (if necessary) McD away from the car and through the door. The principal announces over the PA there will be no tardies today because of traffic back-up. I have no choice but to jump out of car, walk around to his side (avoiding eye contact with all parents stacked up behind me in the drop-off lane), remove McDiesel and his backpack, close the back door, and leave him standing curb-side in the rain, a scrunched up squiggly face in my rearview mirror.

But that afternoon, when I ask McDiesel about his day, he says the happy parts were bigger. He was only a little bad. I open his folder and, voila, it’s true! I’m going to get Mrs. W. the best teacher gift ever this Christmas. She gets it. McD is not doomed to a Frowny Face kindergarten year or to years of academic distress. In the center of the Wednesday box, she’s drawn a medium-sized Happy Face. Beside it she’s written: “Precious little boy!” In the bottom right corner, she’s drawn a smaller Frowny Face. In parentheses: “Kept jumping in puddles when told not to.”

“You know,” I tell my husband, as if this is news to anyone. “A good teacher is going to make all the difference for McDiesel.” Back on campus, I assess my students, not as their professor but as McDiesel’s mother. I see the telltale signs: That kid always has to get up and throw something away. This one shakes his foot for the entire fifty minutes. There’s one who can’t stop talking. Here’s one who is approaching the lectern. I imagine their kindergarten selves, their anxious parents who wait to hear how they did, if they got a Happy Face, if all the medications and therapies and specialists and interventions did the trick. And I know they’re like me, waiting for the report, waiting to learn if their kid is making the grade, if he’s going to be all right.

So my student comes up to the lectern and begins his fumbling explanation.

“Sure,” I say. “I totally understand. Let me help you….”

You won’t believe this, but it’s true: he’s wearing green chuck Taylors.

Keaghan Turner teaches writing, literature, and women’s studies at Coastal California University. Her recent essays have appeared in Brain, Child, Babble, South Writ Large.

Illustration by Christine Juneau

Subscribe to Brain, Child

 

 

Waiting

Waiting

By Keaghan Turner, Ph.D.

Waiting ArtMaybe because I’m teaching a women’s studies course this semester and everything “personal [seems] political”; maybe because of the most recent recrudescence of the Mother v. feminist debate surrounding last spring’s publication of Elisabeth Badinter’s The Conflict: How Modern Motherhood Undermines the Status of Women (passages from which I will assign to my students), I’ve been thinking about waiting rooms as empowering female spaces lately. Then again, maybe it’s just because I spend time every week as a mother in a waiting room, waiting.

I think this is a safe generalization: When you have a kid with a special need, you spend a good amount of time in waiting rooms.

These waiting rooms are different from the typical pediatrician’s or dentist’s. The waiting rooms I’ve frequented over the past few years are the waiting rooms of specialists—play therapists, occupational therapists, pediatric psychiatrists. When we wait for the pediatrician or the dentist, the only sound—besides maybe some coughing, sneezing, and whining—might be mothers softly reading picture books aloud or kids playing on DSis. These are communal public spaces—we are all sitting there together—but we remain isolated, anonymous, private. As parents, we are not there to make friends or to socialize or to chitchat. We are there, waiting for our child’s name to be called. We are there to see the doctor or dentist. We are there to get results. We are there to have a professional make things better.

In the waiting room of my son’s occupational therapist, the waiting room where I spend the most time on a weekly basis, this is not the case. Here, the same group of mothers whose children have the same Wednesday morning appointment slot wait together. These women talk. A lot. To each other. About everything. What’s more, in this waiting room, none of us expects to get results any time soon and there’s no guarantee the professionals can make things better.

The diagnoses of their children vary; the struggles of their families vary. But two things do not vary in the OT waiting room: it is full of women and the children are all boys.

One of these facts should not be totally surprising if we keep in mind that the Centers for Disease Control report that ADHD alone, the most frequently diagnosed (and controversial) pediatric “invisible disability,” is diagnosed approximately three times as much in boys as in girls in our country. As of a 2011 National Health Interview Survey, 5.2 million American children ages 3-17 have been diagnosed with ADHD; that’s 8.2% of that population. Given the pervasiveness—some would say epidemic—of “invisible disabilities” (which is a catch-all for anything on the Autism spectrum, anything neurologically atypical, anything neurobehavioral, anything to do with mental health), it’s no wonder our behaviorist, when delivering our three-year-old son’s diagnosis (after his first couple years of successfully and dangerously baffling all attempts at discipline and smashing a couple flat-screen TVs), said it’s “only ADHD” with a comforting smile and a relieved shrug while we blinked at her, thunderstruck. (After a couple more years in several different waiting rooms, I get the “only” now).

I have attempted to bring reading and to prep for my women’s studies class in the OT waiting room, but it’s impossible to concentrate amid the lively discussions that inevitably ensue—about the desirability or otherwise of covering forehead lines with bangs, about relieving neck tension by sleeping one night on a hard floor, about the latest developments in an ongoing battle with school administrators over an IEP, about the appropriate time to become a mama grizzly. I mostly just smile and nod, but still I know an awful lot of very personal information about a small group of women whose names I’m not even sure of. I know about their family history with panic attacks, their oversized male first-grader’s problems with a petite girl bully last year, how sorry their sister with three kids is that they could only have one. Eventually, it hit me that while I was staring at the same sentence in my women’s studies anthology, I was failing to appreciate the genuinely feminist, personally political experience happening around me on Wednesday mornings.

The atmosphere in the OT waiting room, despite the circumstances—which are sometimes heartbreaking in the form of preschoolers with feeding tubes and second-graders who will never walk or talk no matter how many waiting rooms their mothers wait in—is surprisingly cheerful. In the face of what most of us would consider tragedy (even those of us whose sons “only” have mainstream neurobehavioral disorders), these mothers manage to smile, laugh, and remark on the progress they observe in each other’s sons, even if the progress is as slight as the straightening of an arm. Being in that waiting room is like being inside of a real-live blog—or an old-school support group. Here is a handful of strangers (essentially) brought together by some degree of common experience, sharing their ideas, telling their stories—talking frustrations, failures, strategies, triumphs—and receiving feedback, edification, suggestions, encouragement, sympathy. The communal waiting room remains somewhat anonymous and so is, like a blog, altogether publicly intimate. All of us in the room together are insiders, and there is palpable relief in not having to explain, justify, or define. There is relief in not being judged and in being simply, immediately understood. Because of this insider-ness, there is a level of honesty, candor, and trust in that waiting room that I have never witnessed in a group of female (or male) acquaintances before. The neighborhood you live in, what your husband does for a living, the car you drive, where your degree is from (or if you have one at all)—none of it matters like it might at the pool, at work, or on Facebook. Our larger cause is common enough among us to affect the dissolution of boundaries (socioeconomic, racial, generational) that usually divide us into a true community motivated by a sense of the common good.

Maybe we should announce our affiliation with our own magnetic car ribbons: OT Waiting Room Mothers Anonymous. Neuroatypical Boy-Moms Anonymous.

Sure, there’s a therapeutic element to these sessions in the waiting room that is valuable in itself, but in trading stories and tips from personal experience, I’ve come to recognize that this group—whether they know it or not—exercises a form of consciousness-raising and call to action that goes beyond traditional notions of therapy or support groups. This community of mothers translates their personal discussions into action that often becomes, at least locally, political as they advocate—tirelessly and perennially—for their underserved and/or vulnerable sons: to teachers, school administrators, school boards, lawyers, insurance companies, health care professionals, society at large. This advocacy on behalf of our special needs children, empowered by a community of women, including not only other mothers but also the doctors, teachers, and therapists we collaborate with, must certainly qualify as some of the most important and practical activism some of us will ever perform as women and in solidarity with other women.

My Wednesday mornings in the waiting room have done more than all of my academic reading and training to prove to me the link rather than the conflict between identifying as a mother and identifying as a feminist. Every week I see that being a feminist mother exists not only in teaching our daughters to reject hollow beauty standards but also in banding together to persevere—personally and politically—in raising typically atypical boys.

Want to read more thought-provoking essays? Subscribe to Brain, Child: The Magazine for Thinking Mothers and see why we’ve been receiving awards for literary excellence since 2000.