By Jennifer Fliss
When I ran a search for “parents with disabilities,” all that came back were articles and experiences on raising a child with disabilities. Scores and scores and scores and probably not nearly enough if you are the parent of a child with special needs. But still, it was not what I was looking for.
I am a full-able-bodied new mother. However, my own mother, who lives nearby and wants to play a visible role in her granddaughter’s life, is not. She is 62 and walks, not very well, with a walker. What started as a limp when she was young has degenerated to an almost lack of mobility in her legs. As a child, I was bullied and only one of the frequent taunting refrains was about my mother being a “cripple.” As if that made her less of a person. As if that made me, her child, less of a person.
It is true that it has made things difficult. For years I’ve had to help her with stairs, walk her to the bathroom, provide the sturdy arm that I always thought should be the parents’ responsibility to their children. It is something I struggle with. Often. But it is also something I’ve had to just get over. Be okay with. Not easy.
When I moved from New York to Seattle, my mother followed. When I had a baby, naturally she wanted to spend time with her grandchild. Isn’t that what so many grandparents want? But how would this work? What would she do? There would be no bouncing on the knee, no pushing in swings (as I remember my mother doing for me, while singing Elvis songs), no walks to the duck pond (as I had done with my beloved grandmother), and later, no bowling or trips to amusement parks.
Of course, going through my mind were frustrations when people would say “Oh, it must be so nice to have help nearby.” The thing is, I couldn’t trust my mother to hold my daughter. In her thin and shaking arms, I was sure she would drop her. I certainly couldn’t get a breather while grandma watched over a sleeping or crying newborn. When out of my mind caring for my colicky girl, I desperately needed the help I thought a mother should provide. But, I couldn’t get it. Yes, she wanted to help. She bought us a stroller, a car seat, and myriad other baby items. But I wanted more than that. I wanted what money could not buy. I wanted someone who would hold me and tell me I was doing a great job and here, why don’t I watch her and you get a break, some sleep Sweetheart. But those fantasies never came to fruition. If my mother came to my house, I had to watch over my baby and my mother. And in that selfish time, I just couldn’t.
So, that led me to my Google search. There had to be parents or grandparents with disabilities and challenges like my mother’s. What did they do? How did they do? Surely there was some kind of online support network with resources. Here is a little game Grandma can play with an eight month old. Look at this new gadget that makes it easier to hold a baby for someone with such little body strength. Read this story on this fantastic parent and her experiences and how wonderful her children turned out. Nothing. The digital version of crickets.
What do I do then? I still struggle selfishly, but as a parent, my selfishness must be put aside for the benefit of my daughter. So, I do what I can to foster their relationship. I bring my now thirteen month old daughter to Grandma’s apartment. I set her on the ground, at the same level as her grandmother. And they laugh together. I’m never very far away. If I’m lucky I can sit up on the couch, check my email, read a book. We have gotten a wheelchair for my mother that allows us to go on walks with her. Baby in a carrier or baby backpack, or if my husband is with us, in a stroller and granddaughter and grandma tour the park next to each other, laughing at the ducks or pointing out the resident elusive heron.
I am never going to have a fully-physically able-bodied mother. It is still going to bother me sometimes; the unfairness of it. But I’m also an adult, one that, I think, turned out pretty well, despite my mother’s declining difficulties. Maybe it’s helped me learn compassion. Maybe I understand that others have situations that are worse. I have a mother. And she lives just up the street, less than a mile away. And walking doesn’t mean loving and holding doesn’t mean laughing. She cannot walk. She cannot hold her granddaughter. But she can love and she can laugh and together, they’ll make wonderful ground-level memories.
Jennifer Fliss is a Seattle-based new mother, writer, reader, runner, and has been known to do the flying trapeze. She has written for book blogs, including The Well Read Fish and BookerMarks and other publications.
Photo by Scott Boruchov